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E-petition to make Kalydeco available via the NHS

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Gina73
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E-petition to make Kalydeco available via the NHS

#1 Unread post by Gina73 » Fri Jun 08, 2012 8:57 pm

Could I please ask all you lovely mums and dads to please sign this e-petition. My cousins little girl Tess has cystic fibrosis and carries the G551D mutation, this drug can make all the difference in the world to the quality of her life. Please sign and share this petition so that Tess at least has a chance at a future ♥

Kalydeco to be available via the NHS to all G551D Cystic Fibrosis sufferers in the UK

http://epetitions.direct.gov.uk/petitions/34753

Thanking you all in advance.

Gina
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Mum to Mia & Mason, wife to Steve - life is for living.

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weezypops
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Re: E-petition to make Kalydeco available via the NHS

#2 Unread post by weezypops » Sat Jun 09, 2012 8:56 am

Signed
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XxJack~AcexX
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Re: E-petition to make Kalydeco available via the NHS

#3 Unread post by XxJack~AcexX » Sat Jun 09, 2012 9:09 am

Signed huni x
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Im Gemma, mummy to my 2 gawjus boys. Im married to my childhood love Dom xXx
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Gina73
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Re: E-petition to make Kalydeco available via the NHS

#4 Unread post by Gina73 » Sat Jun 09, 2012 9:13 am

Thanks girls x
Mum to Mia & Mason, wife to Steve - life is for living.

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Re: E-petition to make Kalydeco available via the NHS

#5 Unread post by Jeanette » Sat Jun 09, 2012 3:13 pm

I signed last night.
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Gina73
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Re: E-petition to make Kalydeco available via the NHS

#6 Unread post by Gina73 » Thu Dec 20, 2012 4:54 pm

Just wanted to say a big thank you to everyone who signed this petition for me earlier this year.

VICTORY AS GROUND-BREAKING CYSTIC FIBROSIS DRUG, KALYDECO, GETS FUNDING GO AHEAD IN ENGLAND

This means that my cousins little girl now has the chance of growing up, without this drug she may not see adulthood. I am so happy for my cousin and her family, what a wonderful christmas present for them.

More details :
https://www.cysticfibrosis.org.uk/the-w ... ess-office
Mum to Mia & Mason, wife to Steve - life is for living.

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lea-marie
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Re: E-petition to make Kalydeco available via the NHS

#7 Unread post by lea-marie » Thu Dec 20, 2012 5:04 pm

Fabulous news :D
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Re: E-petition to make Kalydeco available via the NHS

#8 Unread post by weezypops » Thu Dec 20, 2012 5:05 pm

great news!
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