on going medical problems

[natalie1982]

just wondered if anyone child has been unfortunate enough to have ongoing medical problems.

Holly has Von willebrands disease and is under the Haemophilia center at great ormond street.

Matthew has quite bad asthma, reflux, sleep apnoea, allergies to dairy and soya he is also under great ormond street and also colchester general.

samuel has reflux but is just about "coping" with it at the mo hes on gaviscon to help that. samuel is also being tested for von willebrands disease in october.

kind of gets lonely when its just kids, hospitals, trying to chase up 101 things that should be done. but i love my kids so much and its just part of our life now.

[artyfartymack]

Can I join your club. Tom had an ulcerated strawberry mark at birth and reflux, then chronic exzema, then delayed development, then Acid Reflux, then Chronic Constipation. We are constantly seeing specialists and in and out of hospital!

[Jeanette]

You have got your hands full.
I had a period of a few years, back and too to hospitals including Great Ormond Street, with Louise. Your life justs seems to revolve around illness.

[Schmushe]

Joshua -Anemia, Chronic Lung Disease, Heart murmor, reflux, umbiliacal hernia, persistant ear infections, possible diabeties? Delayed development?? Lazy eye with stigmatism

Alexa - Reflux, umbiliacal hernia, delayed development, Jaundice

[artyfartymack]

Gotta love a Premmie Schmushe!

[mitchellmonkey]

Mitch has different type of on going medicval problem that hopefully by the time 5 should all be ok, maybe sooner if he carries on doing so well. He was born with bilactrasl talipes (club feet) where the soles of his feet used to face upwards. He had 3 months in plaster cast from toe to thigh, had an operation in the middle of that and is now in boots and bars to train his feet to stay the and grow the correct way. Hopefully he'll be able of them in a year or two then providing his feet don't revert back to the way they were that should be it, except were still have to have regular hospital check up at the royal london hospital to make sure his ok. It's nice knowing there is light at the end of the tunnel now. Seeing him put to sleep for the operation was the worst feeling ever but well worth it

[natalie1982]

wow didnt think there would be any replys sorry you guys and ur little ones r suffering to hugs xxx

artfarty- what hospital is ur little one under?

great ormond street is a fantasic hospital cannot fault them at all (although having a mare at the mo as they have missed matthew off there list for the last 8 months, not happy!)

michelle didnt realise u coped with so much to hun xx

mitchellmonkey i read about ur little man and saw the pics, is he still in plaster and have the bar
holly was under royal london but got her care changed to great ormond street

holly also has ezcema and quite bad constipation since birth but her blood issue is our main worry.

hugs to u all xx

[artyfartymack]

We are going private at the Nuffield for his constipation and sickness. His development is through the peadeatricians at St Johns where he was born and his strawberry mark was through a Great Ormond Street consultant who also worked at Broomfield and saved us going upto London.

[Schmushe]

Joshua -Anemia, Chronic Lung Disease, Heart murmor, reflux, umbiliacal hernia, persistant ear infections, possible diabeties? Delayed development?? Lazy eye with stigmatism

Alexa - Reflux, umbiliacal hernia, delayed development, Jaundice

Forgot to add - Josh also has athsma, and has bradys and apneaos.

Alexa has had scepticepia (sp?) so is always being checked for this

[natalie1982]

what paed is he under at st johns hun? matthew and holly was under them but no more, we had a horrible time on the ward and with there paed so changed there care over to colchester which is ALOT better. holly and matthew paed was dr cyriac grrr i hate that man.

aww michelle does joshua still suffer from apnoeas? have they looked into it?

[Schmushe]

aww michelle does joshua still suffer from apnoeas? have they looked into it?

He does occasioanlly have them - they did give us a mat to use, but he never laid on it so was constantly going off all night - so we check him on a regualar basis

He also has a severe egg allergy - if he eats egg he stops breathing!!

The joys of children!!!!!

[BrandonsMum08]

omg i feel for you parents and of course the poor children and babies suffering from these things.
I think Brandon may have a touch of asthma as he has sounded chesty pretty much since he was born, which hes getting checked out for next weds. Other than that only minor baby eczema so nothing compared to what your little'uns have got.

[natalie1982]

core blimey u got a list as long as ur arm michelle

do they know what cuases his apnoeas?

matthew has the central type so isnt due to obstruction like most cases are. we have the mr10 graseby on matthew still works very well for him.

and wow an egg allergy to god our kids do make life so much fun dont they.

[natalie1982]

brandonsmum good luck for nxt week r u seeing a speclist or just the gp?
fingers crossed all goes ok xx

[Schmushe]

core blimey u got a list as long as ur arm michelle

do they know what cuases his apnoeas?

matthew has the central type so isnt due to obstruction like most cases are. we have the mr10 graseby on matthew still works very well for him.

and wow an egg allergy to god our kids do make life so much fun dont they.

Dont know what causes them - hes had them since scbu - and tbh nothing is ever done about them, the paed isnt worried and said he should grow out of them.

As for the egg allergy - it used to be everything with egg content as well, which wasnt fun during weaning and we've had many trips to a+e with him not breathing and having to use the epi pen! He now cant have egg in its form, or even touch it.