He started nursery in September and is loving it, its only his grosse motor skills thats affected as he is as bright as a button and knows everything, sometimes too much..lol. His speech was a bit delayed but he is blooming at nursery x

No not really as he has never known any different, he is such a happy child and takes everything in his stride but as a parent its heartbreaking to know his future x

It's a severe muscle wasting disease that leads to paralysis and early death. He is in a wheelchair for long walks as cant walk for long at the moment and only started to walk in January this year. He will be 4 in March but cannot do any transitions like he cannot sit from standing or stand from sit...

Hi people I am from Grays and have a little boy with Duchenne, just wondered if there was anyone out there thats effected by this or have experience of this awful condition?? xx

Just looked at your site hunnie, It's fab and I NEED some things on there ..lol xx

Thank you very much Louise, Hope to get chatting to others and getting to know others xx

Hiya Liz, I too live in Grays, small world eh..lol. Nice to speak to people from the same and surrounding areas as I dont get t meet many people as never have the time x

Hellooooooooooo there, dont really know what I am doing yet or if I am doing this right so bear with me ladies :oops: I do hope you are all well on this Monday evening :) My name is Leesa and I am from Thurrock. I have a son who is 4 in March and he has Duchenne Muscular Dystrophy. Just wanted to co...

I would if I knew how??..lol x

Hello there ladies <Waves>. I am new to all this and thought I would say hello and see how all you lovely ladies were doing??. My name is Leesa and I am from Thurrock, have a almost 4 year old little boy who has Duchenne Muscular Dystrophy.