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E-petition to make Kalydeco available via the NHS
Posted: Fri Jun 08, 2012 8:57 pm
by Gina73
Could I please ask all you lovely mums and dads to please sign this e-petition. My cousins little girl Tess has cystic fibrosis and carries the G551D mutation, this drug can make all the difference in the world to the quality of her life. Please sign and share this petition so that Tess at least has a chance at a future ♥
Kalydeco to be available via the NHS to all G551D Cystic Fibrosis sufferers in the UK
http://epetitions.direct.gov.uk/petitions/34753
Thanking you all in advance.
Gina
x
Re: E-petition to make Kalydeco available via the NHS
Posted: Sat Jun 09, 2012 8:56 am
by weezypops
Signed
Re: E-petition to make Kalydeco available via the NHS
Posted: Sat Jun 09, 2012 9:09 am
by XxJack~AcexX
Signed huni x
Re: E-petition to make Kalydeco available via the NHS
Posted: Sat Jun 09, 2012 9:13 am
by Gina73
Thanks girls x
Re: E-petition to make Kalydeco available via the NHS
Posted: Sat Jun 09, 2012 3:13 pm
by Jeanette
I signed last night.
Re: E-petition to make Kalydeco available via the NHS
Posted: Thu Dec 20, 2012 4:54 pm
by Gina73
Just wanted to say a big thank you to everyone who signed this petition for me earlier this year.
VICTORY AS GROUND-BREAKING CYSTIC FIBROSIS DRUG, KALYDECO, GETS FUNDING GO AHEAD IN ENGLAND
This means that my cousins little girl now has the chance of growing up, without this drug she may not see adulthood. I am so happy for my cousin and her family, what a wonderful christmas present for them.
More details :
https://www.cysticfibrosis.org.uk/the-w ... ess-office
Re: E-petition to make Kalydeco available via the NHS
Posted: Thu Dec 20, 2012 5:04 pm
by lea-marie
Fabulous news
Re: E-petition to make Kalydeco available via the NHS
Posted: Thu Dec 20, 2012 5:05 pm
by weezypops
great news!